lndinfo.org - LND Net - Lesch-Nyhan Disease support group

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DomainData.org :LND Net - Lesch-Nyhan Disease support group

Title:

LND Net - Lesch-Nyhan Disease support group
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Not available
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3
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OK
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Description:

The network for people living with the Lesch-Nyhan Disease, their parents, teachers and anyone interested in learning more about LND.
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lndinfo.org
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"I am is sorry to learn of the closing of this website. It was a life saver when my grandson was first diagnosed 5 years ago, although I am guilty myself of using Facebook rather than this facility on a regular basis to keep in contact with the LND…"
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"I am also very sorry to hear about LND Net closing. It is true that it is not as active as it was years ago because most of the members meet and share on facebook. But as Jane mentioned the years of archived discussions are an irreplaceable source…"
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I am desperately sorry to hear about LND Net closing. It has been the best and greatestfriend of our family during the latest years. It really became a "sunray" for us and Ican't imagine our life without such a unique and huge sourse of information about LND.The archives of discussions here makes it so easy to find answer to almost anyquestion. It helped our family to find our way in living with and LND child, and it wasalmost the only sourse of information available for us. I am so grateful…
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"Ola Janete! Sou Caroline mãe do Gabriel (5 anos). Moramos no Rio de Janeiro. Você é parente de algum menino Lesch-Nyhan? Abraços "
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"Hi Tiffany, i'm Burak's cousin Dilan. You asked me about wheelchair we used to use baby carriage for twins İt was big but its not enough now we had made a special wheelchair i will aploud a photo."
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Dear Friends,
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For 15 years this Lesch-Nyhan support site has been there to bring people together. We have been very satisfied seeing the responses of those who have been touched by the disease. At this point, participation has moved off the site to other networks and the resources which once were fresh have become stale.
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As the saying goes, all good things must come to an end. It is with some sadness that we must announce that this site will be going away soon. Feel free to say your good-byes in public or in private messages.
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Thanks for your participation,
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Dr. Anderson and David Wasserman
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lndinfo.org Alexa Information:

5 Websites linking to lndinfo.org:
wow.com
addiandcassi.com
asylumeclectica.com

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